Happy Easter

This weekend was many ups and down, few steps forward few steps back.  Good steps first.  Gibson is handling his feeding pretty good.  His anatomy in his abdomen is just different than the normal and the doctors are slowly trying to figure out the best thing for Gibson.  The NJ tube seems to be working but his bowels are moving very slowly.  They have been giving him enemas, suppositories and an oral form dripped into his stomach to try and get his bowels moving.   It is working very slowly but it is starting to produce bowel movements.   The main problem with the feeding is for some reason it is causing Gibson to throw up bile.  This is a huge concern because of aspirating into his lungs.  Today they have put the Andersen Tube back down in his stomach (that’s the one that suctions his stomach constantly), to prevent him from throwing up but are still dripping the milk into his intestines.  Just little adjustments here and there in hopes that everything will start working normally and move to an OG tube that just puts the milk straight into the stomach.

We’ve had to go up some also on the ventilator settings these last few days.  Gibson has been having a ton of secretions coming up out of his lungs and they have sent those to have cultures done.  The doctors are saying that it’s a form of pneumonia.  To what degree they aren’t sure right now, but they are treating it heavily with antibiotics.  They have sent a new sample of the secretions down to get a recent culture to see exactly what is in there.  A respiratory infection like pneumonia is very serious in anyone and especially in Gibson’s case with his one good lung and small lung the doctors are taking this very serious and doing everything Gibson needs.  You can tell Gibson is very tired all the time and just wants to get better and come home.  His sad little eyes are so hard to look at, they are just saying pick me up and help me.  One of the toughest things for a parent is to look into those sad eyes and not be able to do anything about it.  We have all our trust in the doctors that they know what is best for Gibson and have faith he will keep fighting.  It is just a waiting game again, trial and error. 

Gibson had a great Easter!  The Easter Bunny was so good to him.  He got books, stuffed animals, clothes and blankets.  All his little stuffed animal friends are all hanging around his bed keeping him company all the time.  His favorite still seems to be the disco ball. We can’t move that or he’ll stick his little pouty lip out and look all over for it.  Gibson had some grandparents come visit today.  He was such a strong little boy through it all.  He knows he is very loved and to make sure that love (and presents) keeps coming his way, he would open his eyes for each of them.  They just fall in love a little more each time and he knows that means more presents.  He’s already learning how to work the grandparents over for presents and goodies.

We were trying to get Gibson to look at the camera but he just won't take his eyes of the Disco Ball.

Thanks again for everything!!  Happy Easter.