April 13, 2011

 Today started and ended great.  This time dad got to hold Gibson as they changed out bedding!  Just that little bit helps fill our void of wishing we could snuggle him.  He is starting to build some ‘reserve’ as the nurses call it.  This means as they do their cares on him like moving his head, suctioning out his mouth and lung and cleaning him up to look good, he is holding his oxygen levels well.  They were able to wean another one of the drips today and turn down a few more settings on his ventilator.  He is handling all of this really well.  They also have turned down his morphine and versed drips (pain med and sedative).  The doctor would like to start seeing him wake up a little more to move and breathe some.  This would help get some of the swelling from fluids off and strengthen his lungs for when it is time for them to take over.   Gibson is such a little fighter and he knows when he needs to start fighting.  The hardest part of turning down the pain meds is seeing him with discomfort.  His eyes get so sad and he sticks his little lip out.  It is the hardest thing to see as a parent when your kid is in pain and you can’t do a single thing about it.  We have had the best nurses these last few days and that really helps us to relax a bit.  They also changed out his tape that has been over his upper lip that holds the ventilator tubing down.  We were able to see for a split second what his face looks like without tape.  Let me tell you, he is even cuter!!  Can’t wait to kiss those little lips!  It is going to still be a few weeks till there will be any talk of changing to a different ventilator where Gibson will do more of the work but we are moving in the right direction now.

We are so grateful for everyone who is supporting us!  You guys make this time a little easier.  We appreciate it so very much and hope that one day we will be able to repay you in some way.